Folks, the Chemosabe gang is at it again.
I started chemo again today. You may recall that I had chemo with the very popular pancreatic cancer drug, Gemcitabine, back in November. At the same time docs put a stent in my bile duct. Since the two chemo doses came so close to when I had the stent placed, it was hard at the time to tell whether the side effects I was feeling at the time were from the stent placement, or the chemo.
So, I stopped the chemo at the time to see if I could improve my strength, which I have.
I went off hospice on Friday. The people at Hospice Austin could not have been any better. But since hospice is designed to help the patient who has less than six months to live, the hospice doctors said that I no longer fit into that category.
Coincidental with all this is that during 2012 there was a long of talk in the pancreatic support groups about some great results coming from clinical trials with a drug called Abraxane. When I first heard the name, I thought it was the name of an album by Carlos Santana. I was slightly off; it’s called “Abraxas.”
Abraxane is very popular with breast cancer patients because it has helped those patients for their treatment and recovery. Fourth quarter 2012 I started hearing much more buzz about how Abraxane was showing strong results in clinical trials for pancreatic cancer treatment. It was not yet approved for pancreatic cancer patients, though. Then shortly after dawn of 2013, it was approved by FDA for treatment for pancreatic cancer patients after years of developing good results for breast cancer patients.
Meanwhile, after the stent placement I started getting stronger and putting some weight back on. I was feeling stronger.
So, the first three Tuesdays of every month going forward I will be getting chemo with Gencitabine and Abraxane. The only pain associated with the chemo is that applying the needle to my port hurts for that quick moment of insertion, but the chemicals don’t hurt during infusion. But, as we go forward and I get more doses under my belt, who knows what effect the chemo will have. Every treatment is different for every patient.
A special note: Those of you who have been following this fight with damien know that Patti and I have forged through this fight with a lot of logical thinking but a larger part of faith and prayers. I know there are family and friends who pray for us, and I made the decision to try again after a lot of prayer. This does not in any way mean that I have lost my faith. After considerable thought and prayer, I felt like this was an answer to prayer.
It wasn’t an easy decision. The sheet the doctor gave us about Abraxane shows about a 10:1 side effect ratio. Potentially, lots of the suckers. Things like appetite loss (who cares about that, I never have had one any way?), nausea, lose my hair (you can use this space to enter your joke about my potential hair loss), and others. I don’t want to bore you with other potential things we’ll be looking for.
As always, thank you all for your prayers and well wishes. We really do appreciate them. God bless you all.
April 9, 2013 at 9:32 PM
So excited to read such positive and great news! I confess of chuckling, no laughing, when you mention hair loss. You crack me up buddy.
April 10, 2013 at 7:49 AM
Chemo is one thing, but you buried the lead when you said you left hospice. That is great news, and one prayer answered! Now we’ll pray for the chemo to do its job.
April 10, 2013 at 3:19 PM
I’m with Dave…so happy that you are so stubborn…LOVE that about you! Wish I could hug you in person…but a virtual one will have to do. Save it til you really need it…and I’ll squeeze extra hard!
April 10, 2013 at 5:49 PM
Praise God! I agree with you on that this type of chemo(I love the chemo save!) is another prayer answered. We are here to support and lift you up on prayer!
April 11, 2013 at 12:57 PM
Derek:
You and your attitude are an inspiration to me. I am praying for you and your family as you continue this battle. Keep the faith and know that you will win the war! God bless you.
Bob