My dad has always had a way with words. His fingers float across the keyboard and effortlessly he writes a compelling, illustrative blog post. It isn’t as easy for me, so please bear with me.
When my dad first started this blog, his intention was to keep everyone updated on his journey through cancerland. Unfortunately, this is where the bus stops and he gets off.
Several weeks ago, the doctor first mentioned hospice to my family. We shrugged it off, knowing dad wasn’t ready. However, at that appointment we were informed that the current treatment was no longer containing the cancer; the tumors were growing. The side effects from chemo had become intrusive and dad was having more bad days than good. The question of quantity vs. quality of life was presented. Dad chose to stop treatments. For 5 years we have placed this fight in God’s hands and now is no different. God has a reason for allowing things to happen. We may never understand His wisdom, but we simply have to trust His will.
When stopping chemotherapy, the hope was that dad may get a boost in his quality of life. This didn’t happen. Without the chemo, the tumors continued to grow and his quality of life started to diminish. All of the treatments and weight loss have left him with very little muscle mass. Because of this, he is prone to fall. Sometimes his blood pressure drops so fast and he blacks out and falls. Either way, he was taking more and more falls. My mom does everything she can to help my dad, but she can’t be with him 24/7. She needs to run errands and get groceries and pick up his medicines. JD and I were starting to think hospice may be necessary, so my mom could get help. My dad had been on hospice 3 years ago, for a brief amount of time, so we knew they offer help for caregivers. We had a family dinner and talked to dad about what was on our hearts. I have 28 years of experience in getting what I want from my dad, but asking for this wasn’t easy. We brought it up casually, and talked about how much help it could be for mom. We then dismissed it; he had not said a word during the entire conversation. The next morning, my mom called to say that dad had decided we were right and they were calling Hospice Austin. My dad was hesitant. He had been on hospice before and came back from it, but he knew that this time was different. He knew that hospice was one step closer to death. We could all tell that this was weighing him down. He doesn’t want anyone to think he is giving up. We look at it like this: he has fought so hard for so long, that now he deserves to rest.
My dad is my hero. He finds the strength to persevere and endure in spite of overwhelming obstacles. Every morning, he wakes up and gets dressed. He’s trying to keep his life as normal as possible, but that’s getting harder by the day. He has been pain-free for 5 years, one blessing we continue to thank God for. Just this week he started having referred pain in his shoulder. Organs don’t have nerve endings, so they can’t physically hurt, but they can cause other places in your body to be in pain. My dad is experiencing this across his back and into his shoulders, caused by the liver shutting down. My dad is dying from liver failure, which is the less painful way to go. Once again, we count our blessings.
Hospice Austin has suggested that we plan our Christmas early. They don’t believe he will make it to the new year. No one knows how much time my dad has left, so all we can do is make every day count. My dad is very tired and very weak. Most days are spent napping and he struggles to find things to smile about. We are all scared, anxious and hurting. It is extremely painful to be helpless in the face of a loved one’s suffering. We all remain steadfast in our faith and look to Him for guidance through this difficult time. Please raise our family up in prayer, that we may all find comfort and peace.
Casey
November 14, 2015 at 7:00 PM
Dear Casey. Thanks so much for this touching update about and ode to your dad. I know how proud he is of you and your family. Please tell him I’m thinking of him as I so often do. ❤ ❤ <3. Connie Mayse (Chicago)
November 14, 2015 at 7:13 PM
Dear Casey. Thank you for letting us know of your Dad’s transition to hospice. I know this isn’t an easy decision for your family. But know that for as much as we loved his wit and warmth for years, the past five years of his blog has been an inspiration to all of us. He taught us how to live each day to its fullest. To see God’s love and grace in everything. Please pass on my love and gratitude. Lynne Caldwell
November 14, 2015 at 8:39 PM
Casey: As someone who has known your dad for longer than you have been on this earth, and known you from afar since you were a “bump”, I am saddened to read your note. When the time comes, please let me know as soon as you can. I want to be there to say goodbye to someone I consider a fast friend, a fellow wordsmith and a true Texas gentleman. In case you don’t have it, my email is pnreinhard@hargray.com and my home phone is 843-706-9991. Thank you and God bless you for the strength and love you have shown us all.
Paul
November 25, 2015 at 8:47 AM
Thank you, Paul. We’ll be in touch.
November 14, 2015 at 8:41 PM
My heart aches for all of you! You are all in my prayers.
November 14, 2015 at 9:28 PM
Casey, your words have touched me in a way I have not felt since the passing of my mom and more recently my in laws. I refused to accept that my life without them was ending, but my faith eased that pain. My heart is saddened yet the memories and joy and privilege of knowing your dad is what I will cherish and hold on to forever. A remarkable husband, father, and friend to so many, Derek will always be an inspiration to me, and I know so many others. His love for you , JD, and your mom is truly something more than remarkable. His journey on earth will be rewarded in Heaven for all eternity. May God bless you all.
November 15, 2015 at 8:52 AM
Casey, thank you so much for standing in your dad’s shoes (or at least his WordPress account) to share his news. Keep spreading the news of how he demonstrated his faith every day.
You and your family are always in our prayers.
November 15, 2015 at 11:40 AM
Casey, your Dad’s battle with cancer has often had me thinking of the Christian Easter hymn “The Strife is O’er,The Battle Won”. The first stanza goes:
“The strife is o’er, the battle done,
the victory of life is won;
the song of triumph has begun.
Alleluia!”
He has fought and he has won — maybe not over Damien — but soon a new life with his heavenly Father. If faced with similar circumstances, I can only hope that I am able to show the same brave determination he has demonstrated for all of us.
I pray for his peace of mind and strength to your family.
November 15, 2015 at 3:48 PM
Casey, you did a beautiful job expressing yourself in words just like your Dad. We will continue praying for Derek and family daily. Love you all and with you thoughts.
November 15, 2015 at 6:33 PM
Casey, I remember you as a young girl when I placed your dad in a job in Cleveland, Ohio of all places! It was not easy to convince him to at least look at Cleveland, but keeping an open mind he got on the plane. The rest of the story you know….
Thank you so much for carrying on and writing this blog. You and the rest of your family are in my heart and prayers.
Carol Carter
November 16, 2015 at 10:51 AM
Casey, thanks for a wonderful posting. Derek was a great wordsmith and storyteller when we worked at the University Star and later at the San Marcos Daily Record in the early ’70s. Your tribute to your Dad reflects the best traits of his writings and storytelling. I am so proud of you and your Derek. Although we have never met, I have met your brother when he was considering TxSt as an opportunity to continue his baseball career. Derek has always talked of you and his family and that make me feel as if I know you and the family. Please give Derek my best. Again, thanks for the update. — Don Flores
November 19, 2015 at 9:43 AM
Casey: Thanks for stepping into your dad’s shoes and keeping us updated. Beautifully done. Please keep me posted on your dad, and tell him he’s in my thoughts and those of many others — Hewitt colleagues in The Woodlands still ask me about him frequently. I’d like to be there for him when the time comes. It seems like forever since we hosted the gathering for the Watson Wyatt crowd the last time he was in Cleveland. You can email me at cmykrantz1@gmail.com. My cell is 248-320-7807. — Chris Mykrantz
November 21, 2015 at 9:31 PM
Please hug him ever so tightly and thank him for sharing so much with us…
.not only his journey but his feelings and his gratitude that are so amazing. ..as HE Is. I love his sense of humor and his writing from his heart. I’m very fortunate to have known him and enjoyed him asa friend. He has blessed so many of us. ..way before he got sick
Our hearts and prayers are with him, u and Patti. Thank u patti for caring for him so lovingly. Blessings to u all… Cindy Hankins
November 23, 2015 at 11:15 AM
Thank you for sharing the journey, and keeping his prayer warriors informed of his progress. Your Dad is an amazing man, and is clearly surrounded by an incredible family. He has that blessing…the blessing of a family that is loving, and devoted to him. Blessings to your family during this time. – Meredith Dyson