Folks, the link below is to an article in the NYTimes today about a cancer conference taking place in Chicago that is touting the importance of the immune system in fighting cancer and some breakthroughs that are happening. This appears to give strong credence to the statement that the immune system can play an important role in fighting cancer. This is what I have been doing for the last 32 months.

A LITTLE BACKGROUND: I was diagnosed with stage 4 pancreatic cancer on September 20, 2010 in Chicago. The very next day, at an appointment with a Chicago oncologist, the doctor told me that if I didn’t start his suggested cocktail of chemo drugs that day, I would be dead by Christmas. Well, it’s June 2013, and I am writing this, not some impersonator.

I got a second opinion from MDAnderson, a cancer center of excellence in Houston shortly thereafter. MDAnderson was not as adamant about the speed for starting the chemo as they were certain that neither surgery nor radiation would help me. Chemo would extend my life perhaps a couple of months or so.

Over the course of the next few weeks or so, Patti and I met with five oncologists. We were living in Dallas by then (having left Chicago behind to be closer to family). Every oncologist recommended chemo, but every one differed on what the chemo drugs should be used. Gemzar was somewhat universal.

My brother-in-law, Bill, suggested that I meet with a holistic practitioner to supplement whatever decision I made about pursuing chemo. Bill was fighting melanoma, using Julia, the holistic practitioner, to supplement his periodic visits to MDAnderson to monitor his fight. Julia said to me after a few initial visits: “If you are so committed to going the chemo route, can you at least give me three months to build up your immune system before you start the process of introducing chemo poisons to your system?” As a holistic provider, Julia was certainly no fan of chemo drugs.

Something about what she asked and the following conversations just made sense to me. I put off the chemo and began pursuing the building up of my immune system and following my faith. This involved quite a variety of vitamin and nutritional supplements, changing nutritional habits (swearing off red meat and carbonated beverages), experiencing a variety of light therapies designed to disrupt cancer cell duplication. Sometimes this meant 4-5 trips to visit Julia a week, some visits lasting from 30 minutes to a few hours. And, absolutely none of this was covered by any insurance.

But, Patti and I were fortunate to have enough to pay for these treatments. We are blessed.

THIS ARTICLE TODAY: At the conference in Chicago, various doctors and researchers are saying that it could be the immune system is more important than originally thought in fighting carcinogenic cell reproduction in the body. Of course, the article mentions that a few of the most powerful drug companies are working on clinical trials with a variety of immuno-related drugs that could replace chemo drugs. One researcher even went so far to mention that immune-related therapies could even replace chemo — certainly not without major pharmaceutical help.

When I read this article, I was near tears. When I was going through the immune build-up with Julia, it just seemed obscene that I could not get any of her treatments approved by insurance. Don’t get me wrong, I believe there is a role for the drug companies, but there are roles for a variety of different approaches. I am just ecstatic that these clinical trials, while self-promoting drug company solutions, may soon find a place nestled comfortably among cancer-ridding solutions. Thank you, Lord!

I am also including here some links to some other recent articles about this latest development,

If you read the NYTimes article below, be sure to read the comments about “cancer tails.” God bless you all and your families

Promising New Cancer Drugs Empower the Body’s Own Defense System

By ANDREW POLLACK

The drugs work by unleashing the immune system to attack cancer cells, much as it attacks bacteria or other foreign invaders in the human body

Related articles

“When the world says, ‘Give up’, Hope whispers, ‘Try it one more time.'” — Anonymous

Today, the family and I learned how quickly despair can turn to hope.

We were a bit despondent when we left the hospital on Sunday. It appeared that all the doctors at the hospital wanted us to meet with an oncologist to decide next steps. While they did try to give us choices, there weren’t many. Frankly, we thought the docs at the hospital just wanted to put the burden on the oncologist to tell us that we’ve pretty much done what there is to do.

So, we met Dr. Jerry at 8:45 am at Texas Oncology. If you are not from Austin, Texas, Texas Oncology is a very large organization that focuses specifically on oncology and nothing else. They have a whole slough of offices here. My friend, Bryan, who is recovering very well from throat cancer, recommended Dr. Jerry, so we made an appointment with him before last week’s hospital visit, just in case.

So, when we arrived, we had mixed feelings. We were expecting bad news.

After I filled out papers that seemed to want to know everything about me except my underwear size, we were shepherded into an office.

Dr. Jerry came in and introduced himself. From that moment on, we were just overwhelmed. Never have I seen such an optimistic, caring, confident, energetic individual with such enthusiasm and love for the work he does.

He was completely up to date on all the scans and MRI. He knew the outcomes from the hospital stay. When we had questions about chemo, or any of the next steps we may have, he let us know that hope was on the horizon and there were numerous options, BUT there were some priorities.

While we were in the room, he got on the phone to make appointments with his most trusted gastrointerologist. He was confident that the ERCP procedure that was not successful Sunday, was a temporary setback. “We can turn that around, I know,” he said.

Gemcitabine

Gemcitabine

We had discussions about chemo and the effects of gemcitabine on quality of life. He was straightforward and gave us straight answers to all our questions. Plus, from some recent research we had heard that there was a report coming out in January that claims that gemcitabine combined with another drug, Abraxane, had been experiencing some remarkable results in treatment of pancreatic cancer. He knew all about that and shared information with us about that combination.

So, after our visit with Dr. Jerry, we had appointments to meet the new gastro guy and to start the next step on removing the bile obstruction. We also had an appointment to learn more about gemcitabine and begin chemo treatment.

So, yes, chemo is on the near horizon, but we are strengthened by our faith and we know that we have not run out of hope.

“Hope is like a road in the country; there was never a road, but when many people walk on it, the road comes into existence.” Lin Yutang

Digestive system diagram showing bile duct loc...

Digestive system diagram showing bile duct location

Here’s an update from the recent hospital visit last Thursday through Sunday:

  • The procedure to remove a bile obstruction Sunday did not work — the pancreatic tumor had so encapsulated the bile duct that the doc could not get past the obstruction to remedy the blockage
  • The doc did offer a couple of alternatives, but suggested that we talk with the oncologist first
  • We have an appointment with a highly recommended oncologist tomorrow morning

The procedure would have made it easier for me to digest food and eliminate the food in a normal fashion. It would have also given me a few more choices if and when possible chemotherapy comes into play.

I want to thank all of you for your prayers and best wishes that have come in over the past few days. God is great!

Stay tuned and I will share with you the next steps after tomorrow’s visit with the oncologist.

__________

There are some things I learned during this past four days in the hospital:

  • When I am lying in the hospital bed, there is no better feeling than when a family member comes into the room
  • If you feel WELL going to the hospital, all it takes is one night when nurses come in the room at 10:30 pm, 11;30 pm, 3:30 am, 4:30 am, 5:30 am, 6:30 am and 7:30 am to make you FEEL sick
  • If you are swearing off watching news programs, as I am, it helps to have an iPod or iPad to wile away the hours listening to music that entertains you and gives you some rest
  • I find I say a few more prayers when I am in the hospital than when I am not
  • One night I turned out all the lights in the room and stood before the mirror — I was sure I was glowing in the dark after all the CT scans and MRIs that I had had so far
  • When the nurse was hooking me up to an IV fluid line, I asked her if I could have the sack that when it is administering the fluids, the process would leave a “steak and potatoes and Shiner Bock” taste in my mouth. Sadly, she said they don’t make IV fluid sacks like that yet
  • All it takes is a stay in a hospital room to help you remember all the vacations and trips you have taken to ANY place that does not resemble a small room with a bed in it
  • At the end of the day, I felt fully confident that the docs and nurses I met, and who provided me with care, truly had my best interests, as a patient of theirs, at heart.

__________

As a patient in the hospital, when the doc comes in and gives me the bad news that he could not successfully perform the procedure, I immediately recall a poster somewhere that said, ” When life gives you lemons, make lemonade.” Well, here is a picture of me with some lemons. I really don’t care for lemonade at all, and, as a diabetic, it’s not good for me.

Tomorrow, I will show you something you can do with the lemons.

Stay tuned to tomorrow to see what else you can do with lemons.

Routinely, after I have an appointment with my oncologist, I send out a routine message to family members. It is usually short, sweet and to the point. Something like this:

“Just had a meeting with the oncologist after a CT scan and blood work. Still no pain; no discomfort; no symptoms. Oncologist says keep doing what you’re doing.”

So, for family and friends who read this, they will reach out to either me or Patti and ask: “So, what is he doing? How come he’s still so healthy after more than a year since the stage 4 pancreatic cancer diagnosis?”

"Who are those guys?"

Every time Patti tells me a friend or family member has asked her these questions, it makes me think of one thing: the scene from Butch Cassidy and the Sundance Kid where Butch and Sundance have blown up the safe in the train and are being chased by the railroad detectives. Butch and Sundance keep running over hill and canyon, prairie and forest, and still the detectives keep coming after them. At one point up on a mesa, Butch looks out and sees the posse still coming after them full force. He looks at Sundance and says, “Who are those guys?”

In my case, I know who “those guys” are — little “bad juju cells” as Johnny Weissmuller would say in his role as Jungle Jim.

Outside of the praise I give to the Almighty for his constant protection, I think there are some basics that I have learned over the past year.

1) Keep your immune system strong. When I was first diagnosed, I started a routine of building up my immune system. This included laser light treatments, detoxification of the immune system, and strengthening the immune system through appropriate holistic nutrients and supplements. I think that helped me tremendously. The Center for Holistic Healing here in Dallas helped.

2) Know what to eat and what to skip. Among the most dramatic things that I did was to change my diet. Well, let’s say I’m TRYING to change my diet. At times, it’s hit and miss. What I mean by changing my diet is that I used to eat quite a bit of red meat. And, as anyone who has worked with me at my various places of employment will attest, I am a 1000% sucker for sugar. Chocolate, really. I used to spend afternoons at the office walking around, grazing for sugar. And, when Patti and I were researching pancreatic cancer, we discovered there were certain foods that PROMOTE growth of the cancerous cells. BAD JUJU. These include red meat and sugar and some processed foods with ingredients you can’t pronounce. I try to stay away from these with various levels of success … and failure.

And, as you may imagine, there are foods you can eat that will retard or slow the growth of these bad juju cells. Those foods include beau coups of veggies, such as broccoli, cabbage, turnips, Brussel sprouts. It’s a good thing that I love all these guys.

The ideal diet for me will have loads of these veggies, and no meat or sugar. We’ve given up soft drinks for tea and water and some coffee. But, I occasionally still have a glass of wine. Don’t drink much beer any more, and I used to have my fair share. I realize that with the wine comes sugar, so I keep that in mind when I DO choose to have a glass.

By the way, please don’t infer I am “preaching” about this. I’m certainly not one to tell others what to do, but since people have asked what I do, this pretty much sums it up. I still have those cravings for a scintillating Fuddrucker’s burger, but I now ask for a vegan version. And, I am trying to dramatically reduce my intake of chicken and fish.

Powerful content

Recently, my sister-in-law, Nina, showed Patti and me a video titled “Forks over Knives.” It was truly amazing and a life changer. The video explains the value of adopting a plant-based diet. Much like other diet and nutrition vehicles, this doesn’t attempt to “sell” you anything but a healthy lifestyle. The businesslike making of points in this video really appealed to me. I don’t like preaching, and this did not come off that way to me at all.

I am not trying to sell anything here at all, but if you want to know more, check out: forksoverknives.com.

3) Exercise some. Yeah, I know this just makes sense. But, for me, it’s easier said than done. I love to sit in front of my computer and write. Things like this fightingdamien blog, or the novel I’m crafting. But that is very sedentary. Do I like treadmills? No, but I know exercise is important. I know there are benefits from hitting the gym, I’m just plain lazy, most of the time. So, do I do well at exercise? No, but I’m trying to do better.

4) Get rid of stress. Ironically, I think this has had a tremendous amount to do with my emotional and physical states. Before cancer, I was a consultant. Lots of travel, loads of pressing deadlines, quick turnarounds, long hours, unruly schedules. At times, that work environment was very rewarding. I like being busy. I like being part of success. I went from work weeks that were routinely 60+ hours with loads of travel, to 0+ hours of work and no travel. It was a very dramatic drop in stress — from bunches to none. Health is my primary concern now, so I do what it takes to stay healthy. Like Martha says, “That’s a good thing.”

I no longer work, except take out the trash, routine chores and mow the lawn. And, occasionally when there is something I know I need to do, but don’t want to do, I pull out the “cancer cough.”  Right in front of Patti, I will show my sad eyes, put my hand near my mouth and cough a very faint, weak, barely audible or even noticeable cough that is designed to elicit her sympathy. It doesn’t work, but it does generate a laugh or two between the two of us and we have heard that laughing causes cancer cells to die. Don’t know if it’s true, but it sounds like it COULD BE true.

I know that getting rid of stress is easier said than done. But there are ways (see number 3 above) to rise above the stress. Making sure you take time for yourself during the day is important. There are loads of stats about the importance of taking time for “you” during your busy day. Sometimes, it’s just a few moments, but having the feeling that you are in control of your day rather than an employer, is a tremendously gratifying and rewarding feeling. Whether it is just going outside for a walk around the block at work or at home, for just a few moments, that helps to ease the stress and help you feel in control.

Contentment: a lab in his pool

Frankly, I think this item has had more impact on my health than just about all of the above combined. A friend told me the other day that he thought I looked very content. I’ve thought about that a lot since then. I am content, very content. I don’t worry like I used to — about everything. Years ago, when I was putting in those long weeks at work, and fitting family around work, I never felt like I knew how the world worked, or how I fit into it. It was a huge foreboding feeling.

Today, I am thankful for this cancer. Yep, I sure am. This past year has helped me become content. I am very content. For the first time in my life, I DO feel like I know how the world works, and I feel like I know how I fit in it. Content feels really, really good! And that, my friends, is worth all the gold in Fort Knox. God bless you all!

Another visit to the oncologist … and continued good news.

When we met with Dr. Trumbly this afternoon, I was a bit apprehensive. Recently, when Patti and I had been feeding and watering the horses on the ranch here, it was exhausting and I did not know how this exhaustion would affect the cancer numbers. And, I didn’t know whether the exhaustion was due to the heat (over 100 degrees for 30 days), the exertion (lifting and moving seven-eight bales of hay two-to-three times a day) or my age (60-year-old doing stuff that normally someone in their 20s would be doing), or whatever.

I don’t think I have sweat this much in years. I’m just a wuss.

But when we met with the doc, he had nothing but good news. The c-19 markers that he uses to determine spread and/or growth of the tumors in the pancreas and liver continue to drop. The last visit they were 190, and today they were 180. Months ago, they were at their highest — 212. Dr. Trumbly said that normally these markers run between 0-35 for someone without this cancer. So, my numbers at 180 are high, but more advanced patients have numbers that run in the thousands, so we pray for stability. But these marker numbers are dropping, and that’s a good thing.

How ironic is this? We revel and celebrate when we have LESS of something instead of MORE. Hell, imagine how much I would celebrate if these numbers were to drop to the 0-35 range. Drinks are on me!

And the good news continues. From this point forward, I will see Dr. Trumbly every THREE months instead of every six weeks.

Thanks to all of you for your good wishes, prayers and staying in touch. I love you all.

Cancer-boy may be lifting more bales and totin’ more water if it means these numbers continue to fall.

To God be the glory!

Last week, I had a CT scan and blood work in anticipation of a meeting with my oncologist, Dr. Alan Trumbly, today.

Patti and I just got back and the report is good. As Dr. Trumbly said, “Look at your scan report. I’ve not seen the word STABLE show up in a CT scan report this much in quite some time.”

He went on to say that the scan and blood work show that the tumors in the pancreas and liver are immobile and … stable. My liver continues to be 100% operational.

There is a very slight elevation in one of my tumor markers in the blood work, but the doc said that is it minuscule. As Dr. Trumbly keeps saying to Patti and me: “Keep doing what you’re doing. It’s working.”

Thanks to all of your for your prayers. That is probably what’s working more than anything I am doing. God bless you all.

Folks, Patti and I have settled into a care routine that involves working with the holistic doctor and the oncologist. Earlier this week (Tuesday), I had a blood test to determine my cancer markers in advance of a meeting with the oncologist today.

Well, to God be the glory. The cancer appears to be stable. Markers continue to be stable. No movement of them at all. Consequently, the oncologist suggests we keep doing what we are doing (the holistic treatments) because they continue to work. Putting this into God’s hands also is working, I believe.

So, I don’t need to see the oncologist for yet another six weeks. Good news to welcome the arrival of Spring.

To those of you who have been praying for Patti and me, our sincerest thank yous. We welcome and appreciate all your good thoughts and blessings. And, in turn, we return them to you and your loved ones.

To help you start a wonderful Spring weekend, here is a view of celibacy:

What is Celibacy?
Celibacy can be a choice in life, or a condition imposed by circumstances.

While attending a Marriage Weekend, Frank and his wife Nancy listened to the instructor declare: It is essential that husbands and wives know the things that are important to each other.

He then addressed the men. Can you name and describe your wife’s favorite flower?

Frank leaned over, touched Nancy’s arm gently, and whispered, Gold Medal-All-Purpose, isn’t it?

And thus began Frank’s life of celibacy…